MS Views and News

MS Views and News
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Thursday, March 26, 2009

MS in the News - March 26, 2009

Stu's Views and MS Related News
A product of MS Views and News, Inc.
MS Views and News is dedicated to the global collection and distribution
of current information concerning Multiple Sclerosis. In collaboration with
other organizations, MS Views and News uses state-of-the-art communication
channels to provide information for those affected by, or interested, in MS.
March 26, 2009

Attached, is this week's MS in the News, e-newsletter. If you are not able to open the attached file, you can view it online at our MS Blog archive by clicking this link: - Please Bookmark this link for future use or for looking back, on older issues.

Meanwhile, open the attached and feel empowered by the information being provided. The e-newsletter will continue to be sent in this format until AT&T can figure-out why I cannot send emails with hyperlinks embedded in an email OR I switch to a new ISP.

If you ever change your email address, please contact me to provide the new address and if you ever want to opt-out of receiving these emails, please ask me to remove your email address from our e-listings. If you have any questions, contact me via email. - Thank You

In this week's edition find:
* a link to join the Global Movement to End MS
* the "Rock for MS" information from MS Friends
* MS Views web links and a volunteer request
* a NEW VIDEO from the WheelChair Kamikaze
* An MS 150 Bike Tour Team request

Our Weekly Postings include:
News of the Laquinimod Study
Continued series on Stem Cell articles
Biogen's potential answer for PML
MS Patients (more than one) Stories
Fact Sheet on another hopeful oral therapy, Fampridine-SR
MS Therapies, Vitamin Supplements and much more
Open the attached file - thank you -- and sorry again for any inconvenience being caused by this current format.

MS Views and News Weblinks

MS Views and News is seeking Volunteers for some savyy, much needed internet exploration.
If you are interested and/or want more information, please contact me at:

MSFriends is having it's yearly fund raising event ROCK FOR MS at 7:00pm, April 23, 2009 at Bimbo's in San Francisco, CA. Rock it out with Grammy award winning singer-songwriter Shelby Lynne along with San Francisco's own Monophonics and Aidan Hawkin. And many other special guest performances! Complimentary drinks and live auction of unique and rare rock & roll memorabilia. You can buy tickets online at There's also an Online Auction. Own Your Moment in Rock History!!! Bid on rare and never seen before rock & roll photography along with HOT rock & roll memorabilia. PLACE YOUR BID NOW

"Join the global movement. End MS!" MSIF launch World MS Day website

MSIF have launched the website for the first World MS Day on May 27 2009 with a challenge to 100,000 people to sign up and "Join the global movement. End MS!"

Remember the Videos that I recently posted from the Wheelchair Kamikaze? Well, he's B-a-c-k.... His name is Marc.
Marc now has a new video that can be found on Stu's Views and MS News Blog, on the lower right of the page.. Under that, there are other MS Videos to watch .
When the blog opens, scroll downward until you find his wheelchair adventure on Broadway and in Central Park.

THIS week's Blog (29) Postings:

AN MS 150 Bike Tour team (in South Florida) is seeking additional riders:
The MS 150 Bike Tour, is May 2nd and 3rd, 2009
My team: EMD Serono Pfizer - Caloosa Riders Welcome new riders, to my team. FREE Jersey for new team members from EMD Serono.
For further details contact:
Andy Hernandez - S-L Marketing Specialists, Inc.
703 NW Juanita Ct. - Cape Coral, FL 33993
Mobile # 786-447-9117 Office: 973-472-0382 (x212)

e-Newsletter Disclaimer:

***Editor's Note: The intent of this newsletter is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.


Sunday, March 22, 2009

MS In the News - (more impactful as the weeks go by)

Stu's Views and MS Related News
Thursday March 19, 2009

In this edition we welcome the The Heuga Center for MS, for all their hard work. Their Logo can now be found on our homepage and on our blog for you to quickly access their website. Also now found on our website's homepage is a section for Shared MS Resource Links. This can be found on the right hand column of the homepage. This shared resource listing will be expanding over the next few weeks.

If you or a staff member of an organization that would like to share your link with us, please write to: Stuart. - Thank you

When viewing our MS Blog in it's original format, you will find that it is becoming easier to use and understand. MS Videos are now available on the lower right of the blog page. Changes are also being made to our website. Remember to use our Blog or our Library of MS Archives to find whatever you would like to know about Multiple Sclerosis.

Once you learn how to use either of these two sites, you will be amazed at the amount of information that is found on either, to help you to better understand this illness. The key to finding the information is to locate the search box found on the blog's upper left hand corner or on the Library of MS Archives found in the middle of the right columned tool bar. Type a keyword into either search box then click enter. After clicking enter, all the articles (found on that site) containing that keyword that you entered will them open. For instance - if using the Library of MS Archives, you find the search box and type PAIN. Click enter or on the word search. All the articles found in this link, will then appear for you to review.

It truly is amazing how simple these are to use...
Then when you have time, take a look at our websites' global MS organization resource links available for your use or for someone else whom you know. MS Facts are available in many languages. This specific page will be made more user friendly in the weeks to come.

Another reminder is for you to use the (an RSS feed) - on our MS BLOG, MS Website or our Library of MS Archives address bar (also known as a URL).
Click the feed -to subscribe for immediate receipt of Blog postings, as they are put onto the sites. With so many articles being posted each day, with so many new things happening in research, the best way to NOT get bogged down each Thursday is to have access to these articles as they post. And the best way to do this is to subscribe to our Blog's RSS feed.

Have you seen the research study information found on our Homepage. Click our weblink found in our header to see the study on Laquinimod, or the studies still underway at Neurological Associates Research..

I ask that all receiving this email, to forward it on to others whom you know are affected by MS. Those affected are NOT just the patient. Those affected are: caregivers, other family members, friends, medical providers and staff from MS Organizations. Share with others what you feel important enough to be receiving each Thursday...
Below, please find this week's Postings, followed by a comment from a reader in Israel.

Here are this week's (33) postings
  1. Detailed MS-specific Information about Dietary Sup... - Alternatives
  2. Rocky Mountain MS Center's info on Alternative Med...
  3. Apitope announces licensing agreement for ATX-MS-1...
  4. The pros of choosing to take MS medications -------- By Merely Me
  5. Heat Intolerance Affects many with Multiple Sclero...
  1. MS Related: Dendritic Cells Ensure Immune Toleranc...
  2. MS news from Australia - Former union boss makes M...
  3. Montel Williams Speaks out of his battles with Mul... - Montel
  4. Parkinson's Disease and Multiple Sclerosis Patient...
  5. MS Research News: demyelination and remyelination ...
  1. High field MRI in the diagnosis of multiple sclero...
  2. Pediatric optic neuritis: brain MRI abnormalities ... - Pediatric MS
  3. Efficacy of treatment of MS with IFN{beta}-1b or g...
  4. New edition of MS in focus on ataxia and tremor
  5. Montel Williams discusses his MS Diagnosis with Dr... - Montel
  1. For Entertaining BeWilderment (is this a word)... - entertainment
  2. A brief description of what Assistance Dogs can do...
  3. Easy Stand - Standing made easy - alternative device
  4. A randomized trial to investigate the effects of f...
  5. Studies to be considered for persons with Multipl...
  1. "The Show Must Go On" - By Kristie Salerno -- How does it feel (or not)
  2. View to see How Tysabri Works
  3. Accelerated Cure Project Status status for the mon...
  4. Sativex Shows Significant Spasticity Improvement, ...
  5. Attention Stu's Views and MS News, Blog Readers......
  1. Low Dose Naltrexone (LDN) for MS - needs more rese...
  2. “COPAXONE® Approved by the FDA for Patients with a...
  3. 100 Fascinating Facts You Never Knew About the Hum... - Did you know?
  4. The Need for a Cohesive Nurse Practitioner Licensi...
  5. Understanding Multiple Sclerosis Fatigue - Fatigue
  1. OHG - Our Heart Greeting - a place for those with ... - an MS peer site
  3. Symptoms/Diagnosis of Multiple Sclerosis
From a reader in Israel with regards to last week's e-Newsletter
Hi Stuart,
This edition is really super! Thanks so much for all the great links. The stress management section from the NMSS is fantastic. I have to say that you're really expanding the site and our connections to what's happening and what we can do in "the state of MS", as in a nation.
Shalom from the desert,
If you have anything to share with us, please write to:
and Thank you for reading Stu's Views and MS Related News.

Thursday, March 12, 2009

Stem Cell issues, Research, Emotion, Symptoms, Pediatric MS and more...

Thursday - March 12, 2009

In this week's edition:
Stem Cell related postings - Information on Logo/Link Sharing
Inform your Neurologist -

This week's postings include:
Variants in Stem Cell technology,
Pain, Fatigue, Emotions, Symptoms,
Many Research articles, Pediatric MS, a request from Stuart
Information on other MS Organizations: The Heuga Center, MSRC, Accelerated Cure Project, Myelin Repair Foundation
and an Un-expected Gift from a...

With so many articles being posted each day, with so many new things happening in research, the best way to NOT get bogged down each Thursday is to have access to these articles as they post. And the best way to do this is to subscribe to our Blog's RSS feed.

WHERE YOU SEE this symbol: (an RSS feed) - on the MS BLOG address bar (also known as a URL), click the feed -to subscribe for immediate receipt of Blog postings, as they are posted. This same symbol is found at many websites and also includes our Library of MS Archives.

So, don't get bogged down or feel overwhelmed with each issue of our weekly e-newsletter. Instead, stay ahead of the game by subscribing to receive our posts.

MS Resource Link sharing like that shown here (MSRC), is a fabulous way to keep viewers updated with information from different organizations. Another example can be found here (at the Heuga Center )

Do you know of the Heuga Center as what they offer to the MS Community? Click to learn more.

The next time you visit with your neurologist, please ask your doctor if he or she has yet visited with our website. It's in your best interest to encourage this medical professional to register so that they too can receive what you, and so many other medical professionals are receiving each Thursday... "Stu's Views and MS Related News".
Provide them with the website address-link found in the heading of this e-Newsletter.

This week's (29) Postings: ( again I will ask you to take your time, you have a week to read these, before our next issue)

Join Talk MS in March -- chat with others
Skin Patches Pose MRI Risk warning when having an MRI
Want to receive this information as it's being posted, so that you don't get hit with them all at one time, Then look above to see the paragraph on WHERE YOU SEE this symbol:

If anybody has ideas on what can be added to this publication each week, please send an email to me with your suggestions.

Monday, March 9, 2009

Choosing the right therapy, Pain, Stem Cell therapy and more...

March 5, 2009
This week's postings include articles on:
Choosing the right therapy, Pain, Stem Cell therapy, Spasticity, Myelin Repair Foundation, an experimental Drug, NMSS Studies and workshops on the causes of MS, and more Please Scroll downward to find these postings and others...

Take a look at our updated MS BLOG layout. / Easier to use. / Easier to find what you seek. / Just plain easier. for example: Have you yet visited MS ? You can link to them and other websites from our MS Blog's web links section. =====================================
Look at Wheelchair Kamikaze's newest Video . It's accessible from our website's homepage. Watch the entire, very entertaining video (only just over 5 minutes in length) . At the end of Marc's video is his Graphics page where he lets others know of MS Views and News - Then take a few extra minutes to watch all of the new videos added to our home page
Including: What it's like living with MS, the Wheelchair Kamikaze, and more.......... =====================================
Catch up on previous e-newsletters from 2009 by clicking : Stu's Views and MS Related News .. Save this link to your bookmarks or favorites for future use.

For those new to this e-newsletter, have you clicked on the Information Banners found on our homepage?
Banners for : The Laquinimod Study, A Pseudobulbar Study, Hyperbaric Oxygen Therapy (H.O.T.) , Neurological Associates Research, MS Lifelines, A Social Security Disability Disability Attorney, MS Center of Miami, Bioness L300, Polar Body Cooling, Housing and Assistive Technologies, The MSF, MS Friends, The Myelin Project, The MSRC,, MS Refugees, and more,,,

The Multiple Sclerosis Resource Centre in the UK has now added MS Views and News to their Int'l MS Organisations Web Page. Other Globally known MS organizations will be doing this soon too, if they have not already done so.
THIS WEEK'S Postings:
Genetics Studies Yield New Clues to Why People Get...
Workshop on Strategies to Find Cause of MS MS Awareness Week
Choosing a Therapy That's Right for You
Have you ever been affected by: Painful paroxysmal... - a patient's story
Stem Cell transplant trial results - The Lancet Ne...
“COPAXONE® Approved by the FDA for Patients with a...
Wheelchair Kamikaze's next Video: The Amster-DASH - video
Oh, My achin’….! Could this be Spasticity? -- written by an MS Nurse
What do you know of the Myelin Repair Foundation?
Information for Patients Newly Diagnosed with Mult... - Newly Diagnosed
Experimental Drug for MS helps to improve walking ... - fampridine
This week's issue is less filled then previous issues as I had our MS walk this past Sunday. An event that I Chair for the National MS Society. An event that utterly exhausts me and then takes me a few days to battle back from the fatigue that it causes. I am sure, that most of you, reading this, understand (can really understand) what I mention, when writing about fatigue... =====================================
Please remember to take a look at our website's homepage to View the study information on Laquinimod, the Pseudobulbar affect and new medications being studied at NEUROLOGICAL ASSOCIATES RESEARCH
New Resource Links are added to our MS blog and MS Views and News website regularly. Added recently: The Huega Center, The MS Society-Uk, the MS Society - Turkey and the MSRC. To find these links and so many more, visit our Blog and find the MS Organization Weblinks section OR visit our MS Website and then click on the Multiple Sclerosis Web Links, found in our Resources section on left side of page. =====================================
If you have MS information or MS resource links that you want seen on any of our pages, please send the information to me or have the MS organization contact us directly. If you are having an MS fundraising event or social activity that you want us to post on our blog, please send these to me as well. This information can be for any global address, as we serve the global community. - Thank you - Merci - Gracias - Danka - and more

Monday, March 2, 2009

MS in the News Stem Cell, Tysabri, Stress, Fatigue and much more

February 26, 2009

In this weeks' edition:
  1. Having direct access to this e-newsletter;
  2. The RSS feed so that you can receive immediate BLOG postings;
  3. A video on a wheelchair excursion from an MS patient;
  4. Information on Barrier Free Living;
  5. Information on this weekend's Ft. Lauderdale MS walk;
  6. A Streaming Video of a PBS MS Program;
  7. Info for the next MS Foundation Cruise (to Alaska)
  8. AND our weekly postings which includes: Stress and MS, Tysabri, Stem Cells, Fatigue, Cognitive Issues and so much more. Review the Titles to each topic category and then click to read items of interest
*For all reading this e-Newsletter from a source other than via Stuart's direct email, take a few moments to complete the registration to receive updates and this MS e-Newsletter directly. No need to rely on a friend to forward you the latest MS News.*

WHERE YOU SEE this symbol: (an RSS feed) - on the MS BLOG address bar (also known as a URL), click the feed -to subscribe for immediate receipt of Blog postings, as they are posted

THIS Week's Postings:

Reminder - Catch up on previous 2009 e-Newsletter issues by visiting our e-newsletter blog-archives

Information from an MS Patient:
Hello Stuart,
I just wanted to thank you for sending out these newsletters, which are an invaluable resource for very important MS information. You're really doing a great service to the MS community.
I've got a couple of links I thought you might like to post.
The first is of a video I made of a wheelchair excursion through the upper West side of Manhattan. It seems to be getting a very nice response, and fellow MSer's are telling me that it's not only entertaining but has helped them in their own struggles to come to grips with the increasing disabilities they face. I hope you'll include it in your newsletter. If the response continues to be good, I hope to be posting more of these videos in the future...
I also came across a very interesting website that I think has a tremendous potential to be a very valuable resource for the worldwide MS community. It's a place were you can post info, both positive and negative, about MS neurologists you've had experiences with. Of course, you can also read what others have posted about a neuro you might be considering seeing.
It would be great if this could become a comprehensive database that could help MSer's weed through some of the terrible doctors out there, and find the great ones. New patients especially could benefit from the experiences of those of us that have been "around the block a few times", and old hands might find direction to doctors who could give a valuable second opinion... -
I hope you find these links suitable for inclusion in your newsletter, and maybe even worthy of appearing in your blog.
Keep up the great work, it's very much appreciated.
Marc Stecker

You might even recognize some of the medical professionals found in this video.

e-Newsletter Disclaimer:

***Editor's Note: The intent of this newsletter is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.


Please share this email with caregivers, friends and others whom you know with Multiple Sclerosis
Thank You - Stay safe - and look forward to next week's e-newsletter
Appreciatively, Stuart Schlossman - editor